WHEF is the only organization engaged in all five key major international coalitions: CHAMP, IHS GPAC, EMHA and WHAM. This allows us the unique perspective and ability to learn from global best practices, engage with world-leading experts, and more effectively empower our communities.
The leadership team are among a handful of patient advocates who are regularly invited to participate, moderate or speak at key stakeholder meetings like CHAMP, WHAM, GPAC and AAN.
Below is a small sample of some of our advocacy activities.
Paula Dumas and Karl Dumas attended Headache on the Hill in Washington, DC in February 2019. They charged the Hill along with 170 fellow advocates lobbying Congress for 2 asks:
- For NIH to issue HEAL Initiative RFAs to expand research on headache disorders.
- To include a blue book listing specifically for headache disorders. Angie Glaser of Migraine Again shared her patient story at the Headache & Migraine Policy Forum breakfast.
The Migraine World Summit is a coalition member and Carl Cincinnato attended the recent meeting New York. The coalition’s goal is to provide tools, resources, and best practices for advocacy efforts around the world.
Carl and the team from Headache Australia participated in the launch of a government advocacy engagement event in Australia’s capital city, Canberra. Deloitte published a Whitepaper called “Migraine in Australia” which revealed the staggering toll of migraine in country. More than 4.9 million Australians, over 20% of the population, are affected.
Each year migraine costs $35.7 billion dollars (AUD). The biggest cost is paid by the government. Parliamentarians met patient advocates and doctors and learned that addressing migraine is good not only for patients but for government.
Wendy Bohmfalk, Director of Operations, attended the first Retreat Migraine. More than 150 people gathered in San Antonio, TX, for the patient conference. Produced by CHAMP, the three-day educational event aimed to connect those with migraine disease with information, resources, and each other.
Wendy spoke about WHEF and the Migraine World Summit to the assembled group. Wendy is pictured with two Migraine World Summit team members, Kellie Pokrifka and Elizabeth DeStefano. Angie Glaser and Megan Howard from MigraineAgain.com also participated.
Delegates, advocates and patient organisations from around the gathered to discuss global issues facing migraine and how best we can work together over conference.