Me vs Migraine is a Webinar Series For Patients
✓ Real people, true stories
✓ Learn from the experience of others
✓ Understand how others experience migraine
✓ Follow the journey of others
✓ See short clips from several experts in each episode
✓ FREE to the public, sign up below to get notified
Watch Episode 1: How Migraine Attacked One Woman’s Gut
Featuring Patient Advocate:
Wendy Neri
Discover how Wendy’s family trip to a theme park ended up with migraine, hospital, and a life-saving emergency surgery in this incredible patient story that we can all learn from.
Questions addressed include:
- How long Wendy had migraine for?
- What was her treatment plan?
- What happened and why?
- Where did things go wrong?
- What she learnt from the experience
- How she manages her migraine condition today?
- What tips would she give to others?
You’ll also hear excerpts from several medical experts from the Migraine World Summit covering several questions raised.
Watch Episode 2: Recovering From Rock Bottom
Featuring Patient Advocate:
Shruti Shivaramakrishnan
Discover how Shruti’s photographic memory and academic standing were stripped; what led to mental health crisis, self-harm and how she came back from rock bottom.
Questions addressed include:
- What was it like having a photographic memory?
- How did migraine strip you of your abilities?
- How were you treated?
- What made your condition worse?
- What led up to your self-harm attempt?
- How was access blocked to your ideal treatments?
- What tips would you give to others who are struggling with migraine, depression and anxiety?
You’ll also hear excerpts from several medical experts from the Migraine World Summit covering questions raised.
Show notes: This interview covers difficult topics about self-harm and suicidal ideation. If you find this triggering for any reason, please call the national hotline in your country.
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Hotlines & Resources
USA:
If you or someone you know has a mental illness, is struggling emotionally, or has concerns about their mental health, there are ways to get help. Use these resources to find help for you, a friend, or a family member:
- Call 911 if you or someone you know is in immediate danger or go to the nearest emergency room.
- 988 Suicide & Crisis Lifeline: Call or text 988 or use Lifeline Chat on the web.
- Crisis Text Line: Text HELLO to 741741
- Veterans Crisis Line: Call 1-800-273 TALK (8255) and press 1 or text to 838255 or use Veterans Crisis Chat on the web.
CANADA:
- 1.833.456.4566
- Text: 45645
- Call 911
UK:
- National Suicide Helpline UK offers a supportive listening service to anyone throughout the UK with thoughts of suicide or thoughts of self-harm. They are open 24/7. Tel: 0800 689 5652
- Call 999
- Shout Crisis Text Line – for everyone Text “SHOUT” to 85258
- https://www.nhs.uk/mental-health/feelings-symptoms-behaviours/behaviours/help-for-suicidal-thoughts/
AUSTRALIA:
- Call 13 11 14
- Text: 0477 13 11 14
- Also call: 000
- https://www.healthdirect.gov.au/mental-health-services-infographic
The US, Australia, and Canada have Kids Helpline.
If your country isn’t listed above, please search “Suicide Prevention Hotline [insert your country]” in Google to find resources in your local country.
Watch Episode 3: When Migraine Throws You Off-Balance
Featuring Patient Advocate:
Bruce Shaw
Discover how migraine advocate, Bruce Shaw, juggled a high-pressure career in education with migraine symptoms that were more debilitating than the head pain itself. In retirement, Bruce found that his symptoms worsened. We explore what he plans to do from here.
Questions answered include:
- Bruce’s disorienting attacks at work
- How his vestibular symptoms throw his day off balance
- The role of stress as an attack trigger
- How he manages attacks so he can continue his advocacy work
- What advice he’d give to others who haven’t improved
- Expert insights on how to manage triggers and symptom
You’ll also hear excerpts from several medical experts from the Migraine World Summit covering several questions raised.
Watch Episode 4: How A Single Mom Fights Chronic Migraine
Featuring Patient Advocate:
Nikki Martin
Nikki Martin’s life looked perfect: a home by the beach, a husband, two beautiful children, and a good job. What few could see were the invisible illnesses that frequently disabled her. Diagnosed with migraine at 15, her attacks kept escalating to the point that in her 30s, with 18 days of migraine each month, it threatened her well-being and livelihood. And then, her husband left.
Uncover how she turned her life around, her hope for the future and tips for others in this incredible patient journey.
Questions addressed include:
- What migraine is like for Nikki Martin?
- What other health conditions Nikki juggled alongside migraine?
- How migraine affected her role as a parent?
- What it was like to lose her job, marriage and financial security?
- How she got through it all
- What changes she’s made to her treatments and management plan
- What she would say to others struggling with migraine, work and parenting.
You’ll also hear excerpts from several medical experts from the Migraine World Summit covering questions raised.
About
Patient advocates share their migraine journey in a trusted and supportive environment hosted by, Paula K. Dumas and Carl Cincinnato. Patients share their challenges, insights and journey through chronic migraine. Short video snippets from leading headache specialists are added to provide additional insight and guidance on specific topics that arise in the patient journey for the benefit of the audience. The webinar is held live with Q&A time for the audience.
In our first episode Wendy Neri pictured here shares her own deeply personal story that almost ended in tradegy.
Who Is It For?
Me vs Migraine is for anyone living with migraine, caring for or a parent or close friend of someone living with migraine
Hosted By The Producers Of The Migraine World Summit
Paula K. Dumas
Paula K. Dumas is a lifelong migraine warrior, Co-Host of the Migraine World Summit, Founder and Editor-At-Large of MigraineAgain.com. She is also a member of International Headache Society’s Global Patient Advocacy Coalition, the Coalition for Headache And Migraine Patients, and a director at the World Health Education Foundation.
Carl Cincinnato
Carl Cincinnato is the Founder and Co-host of the Migraine World Summit. He is Director of Operations at Migraine & Headache Australia. He is also a member of the International Headache Society and its Global Patient Advocacy Coalition, the Coalition for Headache And Migraine Patients, and a director at the World Health Education Foundation.
With Special Guest Appearances From Leading Headache Experts
Do you have an important story that may help others?
We’re looking for powerful patient stories that others living with migraine can learn from. Please consider filling out this short application form to be considered for the next Me vs Migraine webinar!
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